Well, sorry for a few days lapse in there, but being home has been so wonderfully busy! Thank you all who helped move all of our stuff and those who helped clean our old house (the trailer looks amazing! Our landlords were very grateful and so are we!). It has been so fun to be able to settle in, though, as always, is a slow process of getting things where they are supposed to go!
Saturday ended up being a little longer at the hospital than we were expecting. The surgeons were ready to send us out the door at about 10 in the morning, but we had to wait for the oncologist to give the go ahead. We did not expect any problems here since our oncologist had told us 2 weeks earlier that we could go when the surgeons told us we could. However, Kayden's hemoglobin levels had dropped to 6.7 (normal being between 11-14), so the oncologist on call really wanted him to have a blood transfusion before we went home. She argued with the surgeons for awhile, and once she got her way, ordered the blood. Well, then whoever it was that sends the blood (pharmacy?) found weird antibodies in Kayden's blood and wasn't sure if his body would accept the blood or not, so had to have a blood pathologist evaluate his blood. After several more hours they decided he would be fine and so at about 4:45 we started our 3 hour long blood transfusion. By about 8:30 we were finally ready to go; well, we were ready 2 weeks ago, but you know what I mean! Kayden had no idea what was happening and when asked if he was ready to go home said no! Once we got outside he began to calm down, and when he saw our car said, "Blue ruuuummm ruuummm?" We put him in his car seat and he had this tight lipped smile on his face. We thought for sure he would sleep on the way home (an hour and a half from the hospital), but instead he just smiled and kept pointing at different things saying "oh, Mommy!" Bree was so sweet singing to him and making up songs for him about how she was going to live with him forever and take care of him forever, and angels were going to watch out over him. When we pulled up to our house Kayden pointed and said, "Oh, Mommy! New house?" We went inside and he tried to walk (but needed my hand) around and look at all of his toys. The kids had so much fun and didn't crash until almost 11 o'clock at night! Leave it to my kids not to sleep in the next day either! After waking up at 7 we figured we might as well go to church, and it was so good to be back!
We are finally starting to get on a more normal schedule, and are having a great time! We never loved being a family so much as we do now!
Kayden had his second chemo appointment today. When we pulled into the parking garage, he started whimpering because he remembered the garage and was not ready to head back! Aaron's mom and grandparents (who are up visiting for the week) took Bree for a few hours, while Aaron and I took Kayden in. We had a few tears inside, but it helped that it was in the medical office, and not the inpatient (impatient?) area! Like last time, it was a "simple" injection and this is all we are really expecting our whole treatment. They told us that Wilm's is a "light chemo" plan, and we are so thankful for that! Kayden is doing okay after the appointment, had a little nausea, but we have medicine to help with that. He is eating fine (although only fruit at dinner), but we will wait and see how the next few days go.
I am planning on putting pictures up soon, so be watching for that. Otherwise, I will probably only be doing a few posts a week from here on out, in less we have something exciting (which we do NOT WANT!) happen.
Thank you all for you love, support, and prayers!
Saturday ended up being a little longer at the hospital than we were expecting. The surgeons were ready to send us out the door at about 10 in the morning, but we had to wait for the oncologist to give the go ahead. We did not expect any problems here since our oncologist had told us 2 weeks earlier that we could go when the surgeons told us we could. However, Kayden's hemoglobin levels had dropped to 6.7 (normal being between 11-14), so the oncologist on call really wanted him to have a blood transfusion before we went home. She argued with the surgeons for awhile, and once she got her way, ordered the blood. Well, then whoever it was that sends the blood (pharmacy?) found weird antibodies in Kayden's blood and wasn't sure if his body would accept the blood or not, so had to have a blood pathologist evaluate his blood. After several more hours they decided he would be fine and so at about 4:45 we started our 3 hour long blood transfusion. By about 8:30 we were finally ready to go; well, we were ready 2 weeks ago, but you know what I mean! Kayden had no idea what was happening and when asked if he was ready to go home said no! Once we got outside he began to calm down, and when he saw our car said, "Blue ruuuummm ruuummm?" We put him in his car seat and he had this tight lipped smile on his face. We thought for sure he would sleep on the way home (an hour and a half from the hospital), but instead he just smiled and kept pointing at different things saying "oh, Mommy!" Bree was so sweet singing to him and making up songs for him about how she was going to live with him forever and take care of him forever, and angels were going to watch out over him. When we pulled up to our house Kayden pointed and said, "Oh, Mommy! New house?" We went inside and he tried to walk (but needed my hand) around and look at all of his toys. The kids had so much fun and didn't crash until almost 11 o'clock at night! Leave it to my kids not to sleep in the next day either! After waking up at 7 we figured we might as well go to church, and it was so good to be back!
We are finally starting to get on a more normal schedule, and are having a great time! We never loved being a family so much as we do now!
Kayden had his second chemo appointment today. When we pulled into the parking garage, he started whimpering because he remembered the garage and was not ready to head back! Aaron's mom and grandparents (who are up visiting for the week) took Bree for a few hours, while Aaron and I took Kayden in. We had a few tears inside, but it helped that it was in the medical office, and not the inpatient (impatient?) area! Like last time, it was a "simple" injection and this is all we are really expecting our whole treatment. They told us that Wilm's is a "light chemo" plan, and we are so thankful for that! Kayden is doing okay after the appointment, had a little nausea, but we have medicine to help with that. He is eating fine (although only fruit at dinner), but we will wait and see how the next few days go.
I am planning on putting pictures up soon, so be watching for that. Otherwise, I will probably only be doing a few posts a week from here on out, in less we have something exciting (which we do NOT WANT!) happen.
Thank you all for you love, support, and prayers!
So excited for you four!
ReplyDeletei'm so so so so glad that you're all home now!!! i'm also glad that he was excited to be living somewhere new instead of having it be a scary change right after his 2 week hospital excursion. we still pray for him every night with lenore and we praise God that he's home now. now once you guys get more settled in up there we'll have to come up to visit. ;) love you all!!!
ReplyDeleteI hope you have the. most. boring. blog ever from here on out. Love to all of you!
ReplyDeleteSo glad Kayden, mommy, daddy and Bree are in their new home now. So glad we could be with you those 4 visits (first, hospital, very painful); 2nd, at home on Sunday afternoon with pleasant memories of a happy Bree and eventually smiling little Kayden when he tried to run over my toes; 3rd in hospital parking lot while bringing Bree back and seeing Kayden doing so well after treatment (even a smile for me when I handed him his little sucker); and then this Saturday seeing such an adorable Kayden dressed for the parade and looking soooo much better and big sister Bree adorable in the little dress mommy made for her and the happy time together we had before heading to the airport in Portland to begin our flight back to California. We thank God for the precious time together with our family there, the great improvement in Kayden in one week, and for our faith in God's healing hand on little Kayden's body - that ALL cancer will be totally gone from his body and he will be a healthy little boy again.
ReplyDeleteWe love you all, and miss you all.
Grandma & Grandpa (GG's)