Kayden started out this journey so according to the books, and now is really throwing everyone for a loop! His bowels are still moving slowly; he had another x-ray this morning which one set of surgeons thought looked the same as yesterday, another thought it looked improved (maybe he is just tired of giving me bad news). He was given a suppository last night which made him poop a little, but go figure, not enough for the doctors! He was given a second suppository today which had the same sort of result, but this time our main surgeon thought his abdomen looked much less bloated than before.
Kayden has been playing much more like himself today, but still not wanting to get up and move around. He is also very untrusting of other people, really whoever they are. He does not like me to lift up his shirt anymore because the docs have been having me do that, so he doesn't trust his shirt being up for any reason. If we are walking down the hall, or if someone walks in the room, Kayden looks the other way and will not respond to them. For those of you who have come to visit and this has been the case, I'm really sorry, and if you didn't know Kayden before this experience let me assure you he used to be only playfully shy! I just want you to know that I really appreciate your visiting, and Kayden appreciates you not poking him!
Kayden had his first dose of chemo yesterday. I'm not sure what I was expecting, but it was really not what I was expecting! He sat in my lap while the nurse gave him the medicine. It took two minutes tops, and then was done. I had a dream that his hair started falling out last night, but when I woke up this morning, that was not the case!
My specific prayer requests tonight would just be that Kayden's bowels would wake up fully. There is talk of letting him have some real food tomorrow, so please pray that he will be able to keep it down, and even pass it through. I guess also that he would have the appetite for food since he really hasn't eaten in over 2 weeks. May the doctors be satisfied with what they see in Kayden, and may this weekend be our release date! We want to go home. We all are tired of this, and I'm tired of reaching goals the docs set and those goals not being enough once we do reach them. Please also just pray that Kayden would feel the peace of the Lord wrapped around him and that he would feel comfortable and at ease our last days here. May there be complete healing for my little man, and may his pain subside.
Grace and peace to you, our supporters, thank you for all that you have done and for lifting us up in prayer. thank you too for continuing to read this blog; it has been a long haul, and I'm sure just like I don't like having nothing new to report, you don't like to read that!
Thursday, May 21, 2009
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Continuing prayers, continuing love, continuing faith, continuing hope and continuing belief that in His (God's) time, Kayden is going to be a healthy, happy, comfortable little fellow who will forget all these horrible things he has been going through and will be able to go back to trusting people again (forgetting the things that are past). Continuing trust in God's Loving Care and Omnipotent Power to care of all of Kayden's needs and his mommy and daddy's (and big sister's) needs.
ReplyDeleteWe love you all and are so looking forward to being able to be with you next week - flying there tomorrow.
Grandma & Grandpa (GG)