Tuesday, May 5, 2009

The story...

I have told the beginning of our story more times than I can count (especially in the last 24 hours), but in case you do not know, will write it now.
My son Kayden, age 2 1/2 years old, had some blood in his diaper last weekend (April 25,26?) so on Monday I brought him to the doctor to see what was going on. Some of you know my great disappointment in this doctor, and although my disappointment grows the more time goes by, I won't go into that tangent today. During this appointment, they did take a urine sample, which revealed that I am not a paranoid mother, but that there was still blood in Kayden's urine. An ultrasound was scheduled for Friday morning. The ultrasound went well, Kayden did great, except for a few tears at first, but part way through the radiologist was called in. He told me a lump had been found on Kayden's left kidney. After we got home our nurse practitioner called me to let me know that the radiologist had diagnosed this as a Wilm's tumor. It is a kind of cancer that only occurs in children, and there are only a few hundred diagnosed each year in the US. An appointment was scheduled with a doctor in Portland at Emmanuel Hospital. When we arrived yesterday, we met the doctor, talked with him briefly, he looked at Kayden's ultrasound pictures, felt his tummy, told us we were going to be admitted that day, but wanted to have another doctor look at him first. We actually met 4 doctors total yesterday, and were given way too much information, but what I do want to pass on is that right now we are looking at a ct scan today (11 am), and surgery later this week and then chemotherapy for several months. Kayden is doing well considering all the poking and prodding he has endured. Bree is with her grandparents in Vancouver, we are still planning on go forward with our move this weekend, I'm not sure how Aaron is doing, yesterday was crazy and in the midst of it all had to run home (an hour or so away) for clothes, etc and stayed last night with his parents. I had one of those nights where you wake up so many times, feel like the night should almost be over, but somehow it isn't. Kayden is on a fast now for the ct scan, but had some peanut butter toast and milk at about 4 this morning (I thought I'd eat his crust, but he didn't even let a crumb fall!). I am hoping for this blog to be more of my thoughts and feelings (being a woman, I need to process!) but wanted to get the story down. We appreciate your prayers and will try to get pic's up later, but need to wait until we are home!

3 comments:

  1. I have been praying for all of you- if there is anything at all that we can do, just let us know. We may be able to help you move this weekend- we have a flatbed trailer if that helps? give the little guy hugs and kisses from all of us! what a trooper. hugs to you as well, Jill

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  2. just for the record, i think both you and aaron seem to be doing amazingly well. if i were in your situation i would be crumbling at the seams. (but we all know that i'm an emotional basket case.) anyway, i praise God that He's given you such a sense of peace in this time. He's taking good care of kayden as well as you and aaron and bree as well. God is great and He's always listening. there is no way he could ignore the flood of prayers going out for your son and your family. we love you all. you keep writing, i'll keep reading. and praying. lots of praying. - teresa

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  3. I bawled reading this- of what lies ahead. I hate that a 2 1/2 year old has to go through this. My heart aches for your family.

    Your family has God in your life though- and He will provide the comfort and strength you require to get you all through the months ahead. I will check this blog often. You are in my thoughts and prayers daily! --Emily

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